What is this study about?

Researchers are currently looking for adults 18-55 years with a diagnosis of autism to participate in a photo-taking study about their quality of life. We want to know what Quality of Life is to you. What contributes to your quality of life, and how you view your quality of life through photos taken by you.

Can I participate?

Yes, if you are:

  • 18-55 years old
  • Have a diagnosis of Autism Spectrum Disorder (ASD), and
  • Understand spoken and/ or written English

What does it involve?

We would like you to take photos of the things that have a positive or negative impact on your quality of life. To begin please complete the survey in the link below. Following this, you will be asked watch a 15 minute video about how you can use photography to show your experiences. Following this you will be asked to attend a 2 hour focus group to discuss the meaning of your top 3 photos. The focus group will be recorded but results will be presented so that you cannot be identified. After the focus group you will be asked to participate in an interview to share a further 17 of your photos with the researchers.

Are there any risks?

There are no likely risks from this project. Your participation is voluntary, and you can stop at any time. The focus group and interview will be recorded but your identity will be kept confidential. Results will be presented without any individuals being identified.

What might the benefits be?

Your views will provide important insights and information that will be used to develop an assessment tool for better understanding quality of life for adults diagnosed with ASD. You will received a $20 gift voucher for participating in the study.

If you are interested to participate or want more information, contact us:
Rebecca Kuzminski (PhD Candidate) [email protected]
Ben Milbourn (Supervisor) [email protected]

Start the survey here

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