Predictors of Quality of Life of Siblings of Individuals with Autism Spectrum Disorder

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Experiences of family members of individuals with Autism Spectrum Disorder (ASD) is an important area of research.

This type of research is able to explore the positive and negative impacts of being a family member of a person with ASD, as well as indicate areas that might help to improve the family member’s quality of life. Previous research has led to the development of programs to help improve the quality of life of families and of individual family members. So far, most of this research is from the perspective of the parents of a person with ASD. We are interested in gaining a better understanding of sibling experiences.

The goal of this research is to highlight the positive aspects of being a sibling of a person with Autism Spectrum Disorder, as well as identifying negative aspects that might help inform the development of interventions aimed at supporting siblings in order to improve their quality of life.

We are seeking 200 Australian participants to take part in this study. If you have a sibling with Autism Spectrum Disorder, are currently living with that sibling, do not have Autism Spectrum Disorder yourself, and are aged between 15-25 years, then you are eligible to participate.

  • We will ask you to complete an online questionnaire.
    We will ask you to rate how much you agree with statements about your life as a sibling of an individual with Autism Spectrum Disorder.
    The questionnaire only needs to be completed once and will take approximately 15-20 minutes.
    There will be no cost to you for taking part in this research and you will not be paid for taking part.

Click here for more information.

You can also contact head researchers Dr. Mara Blosfelds ([email protected]) or Prof. Natalie Gasson ([email protected]).

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