Researchers at the Telethon Kids Institute are looking for parents and carers of young people aged 0‐20 years with neurodevelopmental conditions to participate in a research project that will test and evaluate tools that assess functioning.

Participants must live in WA and be current participants in the National Disability Insurance Scheme. Examples of neurodevelopmental conditions for this project include Autism Spectrum Disorder; ADHD; Foetal Alcohol Spectrum Disorder; communication, language and/or speech disorder; coordination, motor and/or movement disorder; cerebral palsy; global developmental disorder; intellectual disability; learning disorder; tic disorder; developmental delay and other similar conditions.

The research will provide evidence to the National Disability Insurance Agency (NDIA) regarding the reliability, validity and usability of assessment of function tools within an Australian setting. This will inform the tools used in the intake and planning process for individuals aged 20 years and younger with ASD and other neurodevelopmental conditions seeking to enter the NDIS.

If you are interested in participating, or would like more information, please contact Amy Deverell:

Email: AutismGuideline@telethonkids.org.au
Phone: 6319 1012

Participants will be tested by an Occupational Therapist from the Telethon Kids Institute using a variety of new and existing tools. A copy of the participants individual occupational therapy report and a gift voucher will be provided to parents and carers of participants.

If you meet the eligibility criteria and would like to participate in the project, please complete the background survey.

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