Supporting the needs of families of children with chronic conditions

By Telethon Kids Institute

Researchers from the University of Western Australia want to hear from parents of children (1-18 yrs old) who have special health care needs, chronic health conditions and/or disabilities. These children may see many specialists and services, both in hospital and in the community.

What’s involved?

This research study involves completing an anonymous online survey. It should only take about 20 minutes to complete. Your views and experiences will help the institute understand how the health care system can meet your needs and provide the best care for your child.

How do I participate?

To take part in this survey visit:


If you would like to find out more, please contact:
Dr Rachel Skoss – [email protected]
Associate Professor Jenny Downs – [email protected]


Approval to conduct this research has been provided by the University of Western Australia, in accordance with its ethics review and approval procedures.