Insomnia management strategies for adolescents with autism

By Telethon Kids Institute

Researchers from the University of Western Australia are seeking the help of 6 people to form a reference group to inform the development of a new sleep strategy for adolescents with both autism and insomnia.

About the project

Children with autism often experience sleep problems such as insomnia which tend to persist as teenagers grow older. Currently available treatments tend to provide some short-term benefit, but they often do not provide a long-term solution. Self-guided strategies for behaviour change are beneficial in adolescents with autism as they facilitate greater self-determination. There are currently no specific self-guided sleep strategies specifically for adolescents with autism that have been developed with members of the autism community.

This research aims to investigate what insomnia means to adolescents with autism, how they have managed sleep problems in the past, their opinions on the importance of self-guided sleep strategies and how these sleep strategies should be presented. We plan to work with adolescents with autism to develop a new sleep treatment.

About the position

We are seeking the help of 6 people to form a reference group to meet and discuss the development of a sleep strategy for autism. Information obtained through the reference group will be used to guide this research project.

What am I expected to do?

The researchers would like you to provide input on the following:

  • Input to and support of the research project plan
  • Review interview questions
  • Describe your experiences and opinions on what would be important for you in a sleep strategy

What skills or experience do I need?

Young adults who are between the ages of 18 and 22 years with a reported diagnosis of autism spectrum disorder and have experienced or experience insomnia.

When and where are meetings held?

The researchers expect to host 2 meetings a year of approximately an hour each. The meetings will be held at the University of Western Australia, Crawley campus. If needed you may be called on from time to time across the life of the project outside of the scheduled meetings.

How long am I expected to be involved?

The project will take place over 3 years.

What support is offered?

A $37.5 per hour honorarium will be provided. Training is not essential to participate in this role however information about being involved in a consumer reference group is available from the Community Engagement Team at the Telethon Kids Institute.

If you are interested in participating:

Download the Application Form

And send a completed copy to Melissa Gilbertson from Telethon Kids Institute, [email protected]